Support people living with cystic fibrosis
2020 saw the whole country in isolation. Can you imagine feeling the fear of the pandemic combined with the life-changing diagnosis of a chronic condition for your newborn?
“Last year was a big year for us. On top of lockdown, we moved area, adjusted to life as a family of four and dealt with Jack’s diagnosis aged just six weeks old. Life won’t ever be the same for us.” Amanda, Jack’s mum
And the 3500 Australians and their families who live with the recessive genetic condition Cystic Fibrosis, it saddens me to tell you that for them, even the common cold could prove fatal. From birth, a person with cystic fibrosis must undergo medical treatments and daily intense physiotherapy.
It might surprise you to learn that it can take up to two hours a day to stop the build-up of sticky mucus trapped in the lungs. Any lapse in regime can result in recurrent infections that can lead to hospitalisation.
With the amazing support from our donors we have made significant progress into increasing the life expectancy and the quality of life for people living with cystic fibrosis.
Together there is still more we can do. The impact of your gift will help children like Teddy, Stanley, Jack and the baby born every four days with cystic fibrosis live a longer life unaffected by this recessive genetic condition.
How does your generous gift help?
- Can provide emergency relief subsidies supporting cystic fibrosis families in crisis.
- Can contribute towards accommodation supporting cystic fibrosis families experiencing lengthy hospital stays.
- Can contribute towards the purchase of essential equipment helping people with cystic fibrosis to breathe easier.
- Aid delivery of over 20 crucial programs and services tailored to meet the changing needs of the cystic fibrosis community.